Tales from Rural Maine: Understanding time
Labels: bucksport, Facebook, home, humor, love, maine, microstories, peter, staying in, tales from rural maine, the truth about love
Original Works by Naomi Graychase
Labels: bucksport, Facebook, home, humor, love, maine, microstories, peter, staying in, tales from rural maine, the truth about love
Labels: staying in, TV
Labels: bucksport, home, microstories, peter, staying in
...I stopped taking the pills and never went back to her.
The hormone pills have been out of my system for five months, but the weight gain continues unfettered.
I returned to my PCP a couple of weeks ago to complain (for what feels like the umpteenth time) about my fatigue and especially my weight gain. She was kind, but said it is not from water retention (as I had suspected) and that my bloodwork is normal, apart from something being off with my red corpuscles. She suggested that perhaps I was eating more than I thought now that I have a live-in boyfriend and that I should exercise more. I told her this wasn’t the problem.
She ordered more blood work, but I left so furious and discouraged that I barely slept for two days.
The day after that office visit, I was determined to do as she said—to get 30 minutes of aerobic exercise into every day. After work, I walked for 30 minutes on a level surface at a moderate pace. It was very painful. I got through it by digging deep into my athlete-self and my stoic Yankee self, to plod along, no matter how tired, no matter how painful. I longed for relief and when I finally arrived home, I went straight up to my yoga room to stretch, in the hope of relieving some of the pain. I made it through a couple of standing stretches, but then, collapsed to the floor and blacked out.
The next day I resolved that on my next visit, I would use this as a specific example, so that when I say, “I can’t exercise more,” or “I am deeply fatigued,” or “I can’t recover from exercise,” or “I have no energy,” she will understand what I mean.
**
I am an athlete. A debilitated, overweight athlete who can't exercise, but an athlete nonetheless.
Believe it or not, I have a relatively high threshold for pain. While training for the San Francisco marathon eight years ago, I tore something in my right knee on the tenth mile of a 12-mile training run, but I finished that run. I couldn’t walk the next day, but I finished—and had surgery instead of running the marathon.
When my ACL was torn completely off my femur last summer and my bone was bruised so severely that I was in pain 24x7 for 15 months while it healed, I refused the morphine and the prescription pain killers they offered me. I remained a good sport the day of the injury—howling in the first moments and crying—but also cracking jokes, making decisions, and staying calm.
That ability to function while under pressure and in pain is part of my athlete self and it comes in handy in a crisis, but I now believe that it has prevented friends, family, and most importantly doctors, from grasping exactly how serious the problem is--because I don't let it show.
I realize now that I must find a way to set aside my determination to slog through it, get past my belief that somehow I am just being weak, being a victim, and find the words to communicate to my PCP that something is really wrong. Even though I do my job faithfully for 40 hours every week and I am as active as I can possibly be given my limitations, we can't ignore that I’m not okay. The fact that I have the stamina to get through a 30-minute walk of pain through terrible fatigue comes not from a healthy body, but from the sick grit that makes athletes play through injuries and exhaustion.
But this is not a game—it is not 40 minutes on a court or on a soccer field. This is my life. It’s not a race or a training run. And it’s not just about today—it’s about all these days, hundreds and hundreds and hundreds of them when I have been too weak to move, when I have functioned only because I can dig down and find another gear that makes it possible to buy the groceries, do the laundry, weed the garden, sweep the floor, and file my stories.
I tell this here and now as much to myself as to anyone else. I need to get my story straight so that I can communicate with the physicians or practitioners who might have an answer for me. And I tell it to you now, so that if you are my friend, you will understand what has been going on.
This is why I couldn’t go to Anna’s wedding. It’s why I can’t go to Tom’s wedding in October. It’s why I couldn’t go to the trade show in San Francisco earlier this month. It’s why it takes me a long time to get things done sometimes and why I’ve had to cut back on my duties as a class officer, and limit the other volunteer work I care about. It’s why my office is a mess. It’s why we haven’t moved. It’s why I haven't done a good job these last five years of keeping in touch. It’s why I’ve gotten so very large.
**
While I was home in Maine last month, I saw my grandfather. In front of everyone, the first thing he said to me was, “You’ve put on a lot of pounds.” Then he squeezed the fat on my arms between his fingers and pinched it. Hard. “You need to exercise,” he said.
I doubt he’ll ever see this blog post. But for everyone who’s ever thought I should be in better shape or making different choices in my life, here it is: I’m tired. I’ve been very, very sick and very, very tired for a long, long time. It drove me into bankruptcy. It nearly cost me my life. And trust me when I say, I’ve worked very, very hard to get well--and I'm still not there.
**
These are just some of the things I've done to try to get well:
Currently, I don’t take any prescription medication, apart from things that come up as needed.
I take Tylenol, ibuprofen, or naproxen, as needed for pain and inflammation.
I take Methionine-200 (amino acid) twice daily and evening Primrose oil 1000 mg as prescribed by Dr. Lasneski, an alternative practitioner who is very expensive, but has a unique method that gets results.
I also take:
Copper (2 mg/day)
Iron (68 mg/day)
Vitamin C—1,500 mg
Niacin 35 mg
Folic Acid 825 mcg
B12 85 mcg
Calcium 1050 mg
Magnesium 460 mg
Zinc 17mg
Manganese 2.5mg
Chromium 130 mcg
Sodium 70 mg
Potassium 205 mg
Glucosamine 500 mg
Chondroitin 400 mg
Alpha Lipoic Acid 1mg
Quercetin 1mg
Vitamin A 10,000 IU
Vitamin D3 400 IU
Vitamin E 400 IU
Thiamine 25 mg
Riboflavin 25mg
B6 100mg
Biotin 60 mcg
Pantothenic acid 25 mg
Iodine 150 mcg
Selenium 70 mcg
Proprietary blend 480 mg (Bromelain, pancreatin (4x), choline biatrate, borage oil extract powder, chastree berry extract poswer, amylase, citrus biflavonoids, chamomile poder, inositol, papain, rose hips powder, rutin.
Bach Flower remedies: Rescue remedy as needed (usually daily), Clematis, Water Violet, Honeysuckle.
September commitments: This month I am removing cola from my diet to see if I receive any beneficial effect. Starting 9/13, I am beginning my day with an ayurvedic tonic that promotes weight loss: 1-2 cups hot water, 1tsp honey, squeeze of lemon juice. I drink this first thing upon waking. I also take another ayurvedic tea that includes ginger and promotes weight loss by flushing ama. I also take a weekly anusara yoga class with my teacher (one hour). I do daily meditation in the evening. And I am being gentle with myself: not pushing through fatigue, but rather going with the flow. Attempting to listen to my body and my energy force so that I can exert only that which I have to give on any given day. And I persist in getting results. And drink plenty of spring water, often with lemon. Weekly psychosynthesis. Monthly body work with my chronic pain specialist. And prayer.
**
At my last visit with my PCP, the metabolic panel she ran again showed mostly normal results. And when she had finished explaining them, I burst into tears. “I’m just so tired…” I said. I don’t want to be sick. I’m glad the tests say I’m okay—but I want to know what’s causing this, so I can get better!
She suggested that I should get some therapy and that for many women, childhood abuse is linked to their adult pain symptoms. “I know it’s kind of bullshitty…” she said.
It’s crazymaking to sit in that room and try to be taken seriously, to be understood. I’ve told her I wasn’t abused as I child…I’m not sure it gets through. (Every year when I come in for my annual exam, she says, "Now, you were sexually abused, right?"Sigh...No. I tell her. Again. I never had to endure that.)
And then I start to wonder, does what I went through as a kid count as abuse? Is my physical pain now the result of emotional and physical trauma? How unfair is that?
I assured my PCP that I was doing consistent and good work in the therapy department, through yoga, psychosynthesis, and body work that incorporates a psycho-spiritual release and healing element. She cares about me, but I’m still not sure she gets it. I’ve got that part covered. I need her to rule out—or locate—a cause from a medical standpoint.
She ordered more bloodwork in two months. Referred me to a rheumatologist and an endocrinologist and ordered an ultrasound. And she wants me to keep her in the loop. She also thinks a sleep study might be a good idea.
It’ll be two months before I can see the rheumatologist and four before the endocrinologist can fit me in. (Our health care system is so broken...and I have health insurance!)
In the meantime, what can I do? Continue my healing paths with yoga, psychosynthesis, and body work. Keep trying to sleep right, eat right, and exercise when I can. And I will continue my meditation practice, I think. And continue, perhaps, the ayurvedic path.
There are millions and millions of people suffering with these symptoms…we are exhausted. We are overweight. Many of us are depressed and anxious. And yet we are tasked with all this work of getting answers…because there's no clear path to wellness.
What on earth is going on?
Labels: chronic fatigue, health, illness, staying in
“How are you?” she asked.
[9.26.08 There's more to this post, but I'm having technical difficulties and haven't been able to get it live yet. Stay tuned.]
Labels: chronic fatigue, health, illness, staying in
Labels: foibles, home, staying in
Other people are with people today. I am alone. It shouldn’t bother me, not any more than any other Thursday, especially since I’ve had so much practice, but it does.
My big plan was to watch every episode of Californication in my Showtime On Demand, but the On Demand isn’t working. I called my cable company to get it fixed, but it didn't work.
I said, “I’m sorry you have to work on Thanksgiving,” to the tech support woman.
In the silence that followed, I could hear the keys of her keyboard clicking through the phone.
I could have gone somewhere. I got invited to my neighbor Kelly’s family’s Thanksgiving in Connecticut. But…you know how it is. I can’t…go out. I can’t go in a car to a strange place and be with people I don’t know. Not on Thanksgiving. It’s too much. I might unravel. I might start to cry, to sob. I just can’t go.
It makes me sad that I can’t go.
My biggest fear right now is that something will happen to Peter before he gets here. I’m afraid that after all this work and time, when I finally have a good life within reach, someone who loves me and wants to stay with me; just when I could have things like Thanksgiving—or any other Thursday—with someone who knows my name (and loves me), I’m convinced on some level that he will be killed before he can get here. In a car crash. I’ll get a phone call and…it’ll be terrible. And I’ll barely, just barely live through it. More pain. More alone. More agony. How much more life can I live like this, day-by-day, hour-by-hour, minute-by-minute? How much more can be asked of me? (This is a dangerous question to ask.)
I told this fear to Peter last night. He is sure that he is not going to die in a car crash before he gets here.
It snowed in Colorado yesterday. Peter thought he had his JEEP in four-wheel-drive, but he didn’t. He hit a slippery patch and slid into oncoming traffic. He didn’t die, though. He righted himself and got out of the way before disaster struck.
I need to right myself and get out of the way before disaster strikes.
I am struggling with a terrible depression. It came, and it will not release me. In my journal on Tuesday I wrote:
It’s…pervasive.
Like I am permeable
and this thing, it’s like
humidity
it comes and occupies
my space, my body, my head
In my grief on Monday, I lay down in my bed, and I cracked open. I cried. When it comes like that, I strain against it. It’s like cramping, seizing, only it’s my spiritual heart, my emotional heart, not my muscles. Although, they ache, too.
And then, from inside the darkness, a flash of light, and I remembered that I can ask for help. I sat up. And said, fiercely, aloud, “Help me.” It was an order, not a request. Not begging. It was a command. “Help me.”
I thought of Dumbledore saying that there will always be help at Hogwarts for those who ask. I thought of Pru and the work we’ve done. And I thought about God. And I said, “Help me. Help me, God, and the universe. Help me love and light. Help me every part of myself that knows how to help me: help me. Now.”
And before I knew it, I was rising. And the pain had passed for a bit. And I finished my work day.
I am worried that my worrying will destroy my thing with Peter. It’s magical thinking, I know, but I’m worried that my conviction that he will die rather than reach me will bring it about, influence him, change the course of events. I am reminded of my healer friend Craig. He says I get in my own way.
I need to get out of my own way.
I told Peter about my concerns last night, and about my depression. It was a confession of sorts. He had some idea already of course, but I wanted to make sure he wasn’t being tricked into coming here, tricked into thinking I’m always alright, when I’m not.
“It gets pretty bad sometimes,” I said.
“Well,” he said. “What you have to remember is that now, there are two of us.”
Don’t you just love him? For someone whose greatest agony is that she is always alone, could there be any better balm than hearing these words, now, there are two of us.
He likes that I’m interesting. He says that my sadness and depression are part of what makes me special. He doesn’t want me to be depressed; he admits that it’s a nuisance. But it’s not a deal breaker. Not even close. He says my intense ability to give, to feel, to open, to share—these things mean I also feel sadness profoundly. He understands and appreciates this. He said it’s like being in a village where everyone eats the same amount of food, and you can eat ten times that amount, but no one else understands. Then you meet someone with the same appetite.
He also says he will never stop trying to cheer me up. And that I’m a trooper who is strong. I love that he sees this.
As for my worry about his premature death meaning the end of our relationship before it has really even begun, he has faith that he will live a long and healthy life. When he decided to quit smoking, it was, he said, because if it means the difference between getting to be with me until he’s 82 instead of 80, it’s worth it.
I told Peter I feel like I’ve been asked to run a thousand thousand marathons in this lifetime, and even though I’m so close to the final finish line, my legs and lungs are giving out. Sometimes after a journey that long, you just can’t take one more step, even if you’re within sight of the finish line. You can’t believe you got so close, but no matter how much willpower you have, if your legs have turned to jelly you simply cannot make them move.
Peter says he is coming. He says he is trying to get here before anything happens. He says, very kindly, that if I doubt that, then he hasn’t been clear. So, he will continue to tell me, and to act accordingly, until I have more faith in that than I do in my own predilection for doom.
I was very upset last weekend about the prospect of losing Norman, who I found out on Saturday is beginning the final stages of his life. I talked to Peter about it, and he said it was interesting that he and Norman entered my life at the same time (1989). Peter went on his own journey and Norman stayed with me. Now, as Norman is about to pass on, Peter returns. This cheered me up. In my journal, I wrote:
I love that Peter saw through the mess and the dismay to the heart of the problem. Yes, I love Calvin and Norman so much, and the idea of losing them is so profoundly grief-inducing.
But what really, really hurts is the feeling that I will then be totally alone. I’ll have no reason to live.
I’m not able to say this or even know this in a way I can communicate in my conversation with Peter. But I’m feeling it intensely.
And he knows it.
He knows.
He is steady. And there is a softness to his speech. It’s like when you fall asleep on the couch, and you get cold, but you’re too tired to get up, and then someone puts a blanket over you, and you warm up and relax and fall back to sleep. Peter gave me a blanket last night. An uncomplicated gesture that made all the difference. For him, the answer to the problem was as obvious as the answer to the problem of a cold person on a couch. He could see what I needed. And he gave it.
Peter didn’t die in a car crash yesterday. I should be rejoicing in that good news, instead of worrying about what bad thing will happen next. It just seems inevitable that my dreams will collapse…again.
“But, I thought you were ‘entering a time of transition, a new phase, a new chapter, a new era,’” said Peter, quoting me back to me, reminding me what I used to feel was true, before I sank beneath the surface and forgot that I can float, that I can swim, that I even own a boat. I remembered this, fondly, vaguely, from afar.
“Oh, yeah…” I said.
When I told Jon Reed that I thought I should be happy because Peter didn’t die in a car crash and Norman survived the pit bull attack (what a fucking day!), Jon Reed laughed and said, “Well, if we’re going to count the absence of terrible things as ‘good,’ then that’s true. You should be happy. But we’re--”
“—we’re not those kind of people!”
We both said it together. And we laughed. We laughed hard.
I talked to my friend Tom yesterday. He called from the road. He was on the way to a ribbon-cutting ceremony in Nevada. He’s formed a nonprofit group that is giving away millions of dollars in electricity via solar power to schools and hospitals in Nevada. He lives in California. He just had a baby. And he has a job. But he does this, because he can. Because it’s right and powerful and feels good. I love this about him.
I told Tom about Peter.
“I can tell this guy is right for you,” he said, “because I know you would rather suffer than settle.”
And he’s right. I hate suffering. But I hate settling more.
A friend of mine from my hometown, who is also friends with my sister-in-law, Cindy, said in an e-mail this week, “I really hope things work out for you. I know Cindy gets a bit worried about you. Says you put your whole heart into things and afraid you will get hurt. I say go for it!!!”
And I wrote back, “Thank you. I'm with you on that. Cindy doesn't need to worry. Peter is so good to me, and very committed. It's beautiful. She's right that I put my whole heart into things, and yes, I get hurt a lot, but I think it's the only way to get anything truly wonderful. So, hard as it's been, everything I've gone through was worth it to get me to Peter. And, even if we don't work out, we won't have been wrong to have given it everything we had when we tried.”
Peter and I agree on this wholeheartedly. That even if it doesn’t work out, we won’t have been wrong to have tried. We do not believe that at the end of our lives we will only wish we had been more cautious in life or given less to the things we believed in.
I feel I have run a thousand, thousand marathons, when I only signed up to run one. Maybe two. Three at the most. I am jelly-legged and wheezing, cramped and straining, leaking salt from my pores and seeing double. I feel the ground rising up and slamming into my cheekbone. And then I’m confused to be lying on the ground, pondering a vertical horizon.
I am alone on Thanksgiving. But I am not homeless or broke or hungry or even technically single. And I still have Norman. And comfortable shoes. But the absence of terrible things does not equal “good,” (even though I still suspect that it should).
I asked God for help this week. I asked light and love and the universe for help. I asked myself for help. And what came was Peter, on the other end of the phone, not having died in a car wreck. And Norman, fighting off a pitbull like he was a teenager, instead of an aged old man entering his final days.
I asked God to help me and this morning, I woke up after a night filled with dreams I can no longer remember, and one phrase kept repeating--you know the tune--over and over. It’s been there all day:
Let my love open the door
Let my love open the door
Let my love open the door to your heart
Let my love open the door, ooh
Let my love open the door,
Let my love open the door, ooh
Let my love open the door
to your heart.
I hate Thanksgiving. And, I am alone today. But I do have someplace I could go, if I were able, and wanted to.
Instead, I woke up to a mild day and the sunlight in my room felt gentle. I said good morning to Norman and I washed my face. Let my love open the door, oooh, let my love open the door.
I got dressed in warm comfy clothes. I put my hair in a ponytail. I gave Norman his medication and his treat. Let my love open the door, oooh, let my love open the door.
I made some coffee. I tried to make my On Demand work. I called the cable company for help, but they told me to wait an hour. Let my love open the door. Let my love open the door. Oooh.
I went next door, to take care of my neighbors’ dog. I fed her. Gave her hugs and loving words. I let her out to pee. And then I sat down on the couch. Let my love open the door, Let my love open the door.
I turned on the cable, and their On Demand was working. The dog curled up under the blankets at my feet. The kitten who has never let me hold her came and climbed onto my chest. Let my love open the door, ooh. Let my love open the door.
I turned on the show I had so badly wanted and I watched it, three whole episodes, and I drank my coffee, with the dog snuggled up against my legs and the kitty on my chest. Let my love open the door. Let my love open the door.
After a while, the kitten began to suckle my hand, fiercely. She suckled and suckled, and kneaded my hand with her paws. Her razor sharp kitten claws cut puncture wounds and gashes into the back of my hand, but I didn’t pull away. Let my love open the door, oooh.
There was something so tender, so raw about her need. She survived an abusive beginning and was rescued by my neighbors. She’s several months old now, but snuggled up there with me, she returned to her infancy and suckled and suckled away. Fruitless and desperate and instinctual, her suckling was primal. And I did not turn her away. It was something I could give. I maneuvered my hand to avoid to brunt of her claws, and I held her and let her suckle my hand through two whole episodes. Let my love open the door.
I told Tom that the biggest problem in my life is my desire to have one person I can count on. I want one reliable source of strength and sustenance, of love and stability and affection. But this is not how it goes for me. I have not been able to count on anyone to always be there, to come if I call, to help. But what is also true, the hard, hard lesson for me to grasp, is that life always provides me with what I need, I just never know where from. My life has been visited by a cavalcade of angels, who arrive, unbidden—or so I think—and offer me just what I need, like a hand to suckle on Thanksgiving.
Let my love open the door, Let my love open the door, Let my love open the door.
On this day, I needed company and affection. I needed to be needed. I needed to not be alone. I woke up with a song in my head and sunlight in my room. Let my love open the door. I woke up thinking I would watch some cable at my house, but instead, I was forced to go next door. Let my love open the door. Where I sat on my neighbors’ couch, with a dog who loves me and a kitten who still needs a mom. Let my love open the door, ooh. Let my love open the door. I gave those animals a place to be taken care of, and they in turn, allowed me to channel the love I couldn’t seem to access for myself. It felt good.
When I came back home, I reached for the door, and as my hand closed around the doorknob, the volume turned up on the song that had been playing over and over in my head since I woke: Let my love open the door, Let my love open the door, Let my love open the door, to your heart!
And I remembered again what my healer friend Craig said, all those months ago, about how I need to get out of my own way.
I feel stuck, blocked, trapped beneath the surface and I can’t figure the way out. (Is it possible that I’m lying on top of myself?)
I came inside and Googled the “Let My Love Open the Door” lyrics:
Labels: foibles, home, love, staying in, the truth about love